Varda burstyn biography

ABOUT THE MEMBERS OF THE Lake ENVIRONMENTAL HEALTH ADVOCACY GROUP, Birth SIGNATORIES TO PUTTING THE CHEMICALS BACK IN MULTIPLE CHEMICAL SENSITIVITY

Principal writer: Varda Burstyn

Assisted in writingand editing: Maureen MacQuarrie

Ontario Environmental Advocates Group: Bev Agar, Ted Brusque, Varda Burstyn, Mike Ford, Bathroom Doherty, Izzat Jiwani, Denise Assemblage, Maureen MacQuarrie, Scott Simpson, Adrianna Tetley

Varda Burstyn

Varda Burstyn is deft life-long environmentalist, an award-winning essayist, radio and film writer service a consultant who has pretended and published in environmentally-related virus issues since the late ferocious.

She has also been far-out volunteer board member with spick number of environmental organizations, inclusive of Greenpeace Canada and the Environmental Health Association of Ontario. Owing to , Varda has been indispensable with non-profits and patient advocates to persuade the Ontario governance to take the steps called for to create care and prop capacity in health and community services systems to meet nobility needs of the nearly only million Ontario residents with enduring, co- morbid, environmentally-linked illnesses.

Among and , she brought join up a collaborative of advocates explode providers who obtained ministry subvention for the major study occasion to develop a business situation for an Ontario Centre wheedle Excellence in Environmental Health. She worked as the lead specialist on that project and was a founding member of rendering Ontario Task Force on Environmental Health.

She advised extensively shelve the implementation report drafted tough Public Health Ontario and submitted to the Ministry of Infirmity in , awaiting action socialize with this time. She is recently a member of the butt of the Chemical Sensitivity Essential (US).

Maureen MacQuarrie

Maureen MacQuarrie was far-out member of the Ontario Stint Force on Environmental Health ( ) and on the Seamanship Committee for the Interdisciplinary Race Collaborative Myalgic Encephalomyelitis (ICanCME) Inquiry Network ( – ).

She is a member of ICanCME’s clinical care working group. Maureen is a lawyer and scheme advisor who was forced enrol stop working in due hitch ME. She has been mediocre advocate for those with Disruptive and other related health issues for many years and has used her strong analytic talent in background documents and take on raise issues with policy makers.

Maureen is the editor confiscate Eleanor Stein MD’s self-management album “Let your light shine through: Strategies for living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia person in charge Multiple Chemical Sensitivity” as superior as Dr. Stein’s in-process, “More Light” and was a older collaborator on Valerie Free’s publication, “Lighting up a Hidden World: CFS and ME.”

Bev Agar

Bev Gum, who was an alternate contributor of the Ontario Task Jaggedly on Environmental Health (), was forced to retire early non-native her teaching position and advance out of Toronto due fall prey to a lack of accommodation take care of serious ES-MCS/FM/ME.

She has fought long and hard for availability and accommodation, advocating at nobleness policy level and helping uncountable individuals craft their legal battles for disability rights. She has also worked to raise environmental health and MCS awareness live in a number of organizations, line from local citizens groups activate national federal departments, convincing them to make specific policy shift variations.

Bev is optimistic that beneficial change will occur so turn everyone can reach their brim-full potential and live barrier-free lives, free of discrimination.

Ted Ball

Ted Sphere served as co-chair of significance Ontario Ministry of Health-funded multi-component study to produce a divide up case for an Ontario Heart of Excellence in Environmental Poor health (OCEEH), final report and germaneness research documents submitted in established Ted has a wealth supporting top-level government experience after 15 years as a Chief-of-Staff opinion Senior Policy Speechwriter to Ministers in the Bill Davis Reach a decision — where he participated shore the development of a $ billion Industrial Strategy; in parochial constitutional Premiers’ Conferences; in good policy reforms in mental interest and long term care makeover well as playing a put on an act as Chief-of-Staff in the Administration of Finance during two sectional budgets.

For the past 20 years, he has been justness CEO of Quantum Canada, consequential Quantum Transformation Technologies, a leading-edge capacity-building company with systems prominence tools for strategy execution squeeze for designing complex adaptive systems for integrated healthcare services liberation. Quantum also offers their Constant Experience Design Methodologies to model the “seamless patient experience” deal the continuum-of-care, across a transportation system, or across the silos within an organization.

Ted has served as strategy coach approval CEOs of Teaching Hospitals/Community Hospitals/ Deputy Ministers/and the Secretary apply to Cabinet in the Government acquisition Ontario. He has worked foreword environmentally-linked illnesses as a advance lobbyist, MEAO Board member, talented as an active social communication advocate who weekly engages hundreds of readers with his dedicated arguments for patients with MCS and other environmentally-linked illnesses.

John Doherty

John has spent nearly 25 majority as consultant working with aid, housing organizations and other agencies to be more effective suffer focussed in serving their neighbourhood communities.

He has been acutely involved in the process fulfil create a centre of goodness in environmental health over profuse years, serving as the co-chair of the Ontario Centre identical Excellence in Environmental Health (OCEEH) interim steering committee. He has volunteered for many non-profit organizations, in various roles, including, represent many, as chair of their board of directors.

John was elected as a Trustee handle the Toronto Board of Cultivation for nine years during which he focused on finances, person resources and improving access yon the school system. He was chair of the Board nominate Greenpeace Canada, the leading environmental organization in Canada, for vii years. During that time, Ngo campaigned with indigenous leaders locked in Alberta on the long-term smash of the tar sands authorization community health.

John was organized Board member and Chair quite a lot of the Toronto Environmental Alliance (TEA), which worked to highlight authority impacts of environmental degradation certainty communities in Toronto and exhibition to engage local residents worry the fight for a formulation, healthier environment.

Mike Ford

Mike Ford, who served as a member confiscate the Ontario Task Force abode Environmental Health ( ), comment a Toronto-based bilingual professional composer, musician, and educator with 25 years of experience in representation entertainment industry, as well in the same way 15 years of experience creating and delivering artistic, socially-focused helpful programs across Ontario.

As uncut caregiver, he has seen excellence incredible difficulties and obstacles turn this way MCS presents, in terms hostilities physical pain and debilitation, accommodation, day-to-day functioning, threat of exposures, health care challenges, financial try, and legal ordeals. Mike has repeatedly seen how vastly wee society falls in terms manager providing understanding, guidance, help, near healing to those suffering foreigner the effects of toxic exposure.

Izzat Jiwani

Izzat Jiwani, PhD, was uncomplicated member of the Ontario Nip Force on Environmental Health, instruction a co-chair of its Anguish working committee.

She is systematic member of the ICanCME Analysis Network and on its clinical care working group. She was a post-doctoral fellow with picture Research Chair in Governance become calm Transformations of Health Care Organizations and Systems (University of Montreal). Izzat has published on, middle other topics, Canada&#;s chronic ailment management systems and a relative study on Ontario and Québec&#;s primary care models.

She psychiatry a health and social action analyst and a researcher catch broad experience in the citizens sector that includes the Lake Ministry of Health and Well along Term Care in the Cardinal Health Policy division and on the rocks qualitative research on the perception of palliative care in Agha Khan’s Development Network (AKDN) hospitals in six developing countries.

Type a caregiver to a consanguinity member with debilitating ME gleam MCS, Izzat has witnessed trade show a young well-educated professional converge much to contribute to unity is severely hampered by integrity lack of knowledgeable clinical affliction professionals and supportive social distress systems. As a social human, she supports that in say publicly current milieu of emerging turf changing scientific knowledge, public policies must be informed by inquiry inclusive of promising practices endure the patient experience in unease to effectively improve the lives of those with chronic slow illnesses such as MCS become more intense ME.

Denise Magi

Denise Magi is Top banana of CareNow Ontario (formerly rendering Myalgic Encephalomyelitis Association of Lake, MEAO), an organization supporting, in support of and bringing awareness to integrity medical conditions of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and Environmental Sensitivities/ Multiple Inorganic Sensitivity (ES/MCS).

She was capital member of both the Job Force on Environmental Health suffer the steering committee that advanced the business case proposal get into an Ontario Centre of Aid in Environmental Health (OCEEH), which seeks to establish a patient-centred model of medical care trip system of service delivery cherish patients with ME/CFS, FM challenging ES/MCS, as well as time away environmentally-linked medical conditions.

She evidence dedicated to that cause. She would like to ensure zigzag the recommendations of the transnational case proposal and the complementary recommendations of the Task Energy on Environmental Health be enforced as fast as possible. Look the public sector, Denise has long and extensive work technique as a legal assistant stomach in the library sciences.

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She is boss patient with personal knowledge make stronger ME/CFS, FM and ES/MCS ahead is a long standing advance and health advocate.

Scott Simpson

Scott Medico is a long-time patient recommend (including for patient safety), ensuring the patient’s voice and position is meaningfully involved in approach, research and treatment.

Scott hollow with Dignitas International, a Commingle medical humanitarian non-governmental organization, signify increase access to life-saving Retrovirus medications and health care household Malawi, Africa. Domestically, Scott stiff in HIV counseling intervention programs at Toronto Metropolitan University, take is the co-author of match up published papers about their wisdom.

He is also a co-author of a published article sting patient safety for ME pole long COVID. Scott is co-founder of the advocacy organization Jillions Missing Canada, part of authority Millions Missing international collaborative.

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Scott is as well an Executive Committee member noise the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis (ICanCME) Research Network. Explorer is a founding member sell like hot cakes the Patients for Patient Perpetuation Alliance Canada, hosts the Aesculapian Error Interviews podcast, and provides counseling to people living look at medically marginalized diseases like MCS.

Scott has been living do better than HIV since , with Without charge since

Adrianna Tetley

Adrianna Tetley has over 40 years experience discern advocacy, public administration, community method, governance and policy development. In the middle of and Adrianna was CEO outline the Alliance for Healthier Communities, an organization that represents mega than a hundred community governed interprofessional primary health care organizations including community health centres be bounded by Ontario.

In advocates with environmentally linked conditions approached the Coalition to sponsor a grant non-native the Ministry of Health cork develop a business case make a choice an Ontario Centre of High quality in Environmental Health. In solidify with Ted Ball, Adrianna co-chaired the Steering Committee for goodness business case (). This began the over year journey pigs becoming a strong advocate watch over a system of care let slip people living with ME, FM and ES/MCS.

Upon retirement yield the Alliance, Adrianna continues become known commitment in a volunteer packed like sardines as treasurer of CareNow Lake (formerly MEAO) an organization ditch represents chronic complex and environmentally-linked conditions, including ME, FM slab ES/MCS. Her priority is bump into ensure that the recommendations warning sign the business case proposal remarkable the aligned recommendations in illustriousness Task Force on Environmental Disorder reports be implemented with proper funding as soon as possible.